Search Results for 'Skyclarys'

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Galway Friedreich’s ataxia campaigners to join national demonstration over treatment costs

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A few months ago, I interviewed Aoife Quinn from Oranmore for the Galway Advertiser's April 16 issue. Aoife chatted with me about her experience with Friedrich's Ataxia (FA), and how there is a treatment available, called Skyclarys, which could help slow down the progression of the disease and improve the quality of life for people with FA.

Fighting for Time: Galway woman’s battle with rare disease

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Aoife Quinn is a 23-year-old woman from Maree, Oranmore, who is coping with a frightening progressive disease.

 

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