Search Results for 'Muscular dystrophy'

Sinn Féin Mayo senator Rose Conway-Walsh has stressed the importance of an all-Ireland approach to securing patients’ access to a life changing drug treatment. Speaking after a briefing in Leinster House at which families of Duchenne muscular dystrophy sufferers spoke of their ongoing efforts to secure access to the drug Translarna, Sen Conway-Walsh said: "As legislators, across all political persuasions we have a responsibility to join the fight of these families for access to treatment which will, as it has done in the North and 22 other countries, significantly delay the loss of walking and associated respiratory difficulties."

Join Our Boys Trust are asking you to wear orange this Friday May 1 as part of Wear Orange Day in order to raise awareness about Duchenne Muscular Dystrophy (DMD).

Join Our Boys Trust are promoting Wear Orange Day on May 1 to raise awareness about Duchenne Muscular Dystrophy (DMD).

Following the much enjoyed success of last year’s talent competition, Turloughmore GAA Club has joined forces with the DMD Charity, Join our Boys, and is hosting another event, this year to be held on Saturday, November 8.

RTÉ newsreader Aengus MacGrianna will be hosting a charity fashion show in the Radisson Blu Hotel on Sunday May 4 in aid of Muscular Dystrophy Ireland.

Researchers in NUI Galway have this week announced a breakthrough in the fight against the degenerative neurological disorder Huntington’s disease. A team at the university’s Centre for Chromosome Biology has discovered experimental drugs which could be developed as a way to slow the progress of the condition.

Researchers in NUI Galway have this week announced a breakthrough in the fight against the degenerative neurological disorder Huntington’s disease. A team at the university’s Centre for Chromosome Biology has discovered experimental drugs which could be developed as a way to slow the progress of the condition.

Researchers in NUI Galway have this week announced a breakthrough in the fight against the degenerative neurological disorder Huntington’s disease. A team at the university’s Centre for Chromosome Biology has discovered experimental drugs which could be developed as a way to slow the progress of the condition.

A Mullingar teacher is appealing for support for the national ‘Have a Heart’ fundraising campaign, which kicks off this weekend in aid of Muscular Dystrophy Ireland (MDI).

A GMIT technology student has helped enrich the lives of twin brothers with muscular dystrophy through the use of communications technology.