Search Results for 'Lissencephaly'

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Tommy O’Donnell trust looks for help

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Tommy O’Donnell is a three-year-old boy from Belmullet who suffers with lissencephaly. This means that for his short life he will remain with the physical and mental ability of a five month old baby. He requires 24-hour care due to daily seizures which could be fatal for Tommy. A trust has been set up to provide assistance for his family, as an extension and equipment for his home is required so Tommy can be cared for at home. Tommy’s family had arranged finance to pay for this, but Tommy’s dad was diagnosed with carcenoid cancer which began in his bowel and has spread to his liver, lung, and bones.

Baby Ella fundraiser in Castlebar this Sunday

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A fundraiser for a Ballyglass girl born with an extremely rare brain disorder is taking place on Sunday night (April 20) in the Failte Suite at the Welcome Inn Hotel in Castlebar.

 

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