The decision by the HSE to approve access to a particular medication for children with Spinal Muscular Atrophy (SMA ) is welcome news for families affected, East Galway’s Minister Ciaran Cannon has said.
He has welcomed the decision of the HSE to approve access for Spinraza for children with Spinal Muscular Atrophy (SMA ) Type I, II or III on an exceptional and individualised basis.
Minister Cannon said: “The Minister for Health Simon Harris has confirmed the decision was made by the HSE leadership team this morning.
“This is such welcome news. Families have fought a long journey to get here but I am so pleased children will now have access to this drug.”
He outlined that Minister for Health Simon Harris confirmed there will be no delay in accessing the drug. “I want to commend the families for their campaign and the HSE for approving access.”