Search Results for 'Rare diseases'

12 results found.

Tips to maintain healthy winter skin

We expose our skin to a lot on a daily basis, probably without considering the impact it can have. As we are in the midst of a cold snap, Wholefoods nutritionist, Nicola Murphy, shares some tips to maintain healthy skin throughout the winter months.

Make a splash for Down Syndrome Galway

Down Syndrome Galway's annual Christmas Fun Swim is taking place again this year on Christmas morning. The event is open to all ages and all levels of ability. Participants do not need to be a swimmer to participate, just be willing to walk, run or jump in to the sea on Christmas morning. Getting wet is what it is all about.

Local soccer tournament to support MPS charity

A seven-a-side soccer tournament will take place tomorrow (Saturday), in the Watershed facility, in aid of a very worthy cause.

Charity boss to push teenager in shopping trolley from Galway to Clifden

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A charity boss who lost his daughter to a genetic skin blistering condition will pull a 16-year-old boy in a specially converted shopping trolley from Clifden to Galway next month.

Newborn screening for cystic fibrosis will result in better prognosis for long term for sufferers

The introduction of cystic fibrosis screening for newborn babies will result in earlier intervention and treatment and a much better prognosis long term for children with the condition, according to the chairperson of the Galway branch of the Cystic Fibrosis Association of Ireland.

Research under way at NUI Galway to develop a dressing for EB sufferers

Research is under way at NUI Galway to develop a wound dressing for people suffering from the genetic skin blistering condition Epidermolysis Bullosa, (EB).

Cell by dates

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Epidermolysis Bullosa (EB) is a genetic skin disease where blistering occurs on the skin and on internal linings such as the mouth and the intestines. It is believed to occur in an estimated one out of every 50,000 births worldwide. Those affected are often described as ‘butterfly children’ as their skin is as fragile as a butterfly’s wings.

CF sufferers are unlucky to be born Irish

Is there anything more this Government has left to do that can shock us? Is there much they can introduce next Tuesday that will horrify us as much as the heartless decision this week to kill the little bit of hope that lay in the hearts of cystic fibrosis sufferers and their families? For such people, life is a constant struggle against death. Every shower of rain, every dark cloud, every sneeze, every shared waiting room is a potential killer.

Fundraiser for MPS Society of Ireland

A fundraising event in aid of the MPS Society of Ireland will take place at the Harbour Hotel on Friday May 15 at 8pm.

Croí appoints new fundraising manager

Local heart charity Croí has announced the appointment of Edel Lambe as its new fundraising manager.

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