Search Results for 'Muscular Dystrophy UK'

Sinn Féin Mayo senator Rose Conway-Walsh has stressed the importance of an all-Ireland approach to securing patients’ access to a life changing drug treatment. Speaking after a briefing in Leinster House at which families of Duchenne muscular dystrophy sufferers spoke of their ongoing efforts to secure access to the drug Translarna, Sen Conway-Walsh said: "As legislators, across all political persuasions we have a responsibility to join the fight of these families for access to treatment which will, as it has done in the North and 22 other countries, significantly delay the loss of walking and associated respiratory difficulties."