The Centre for Economic and Social Research on Dementia at NUI Galway are leading the first ever study in Ireland looking at supports and services available for people with dementia and their families following a recent diagnosis. The study aims to recruit informal carers, often family members, who are providing regular care and support to a loved one diagnosed with dementia in 2017 or 2018.
Carers may feel uncertain following the diagnosis of a loved one with dementia. The study is focused on identifying the most important services and supports at different stages of the illness. The results of the study will inform policy in relation to the supports and services that need to be in place to help carers and people with a recent diagnosis of dementia to deal with uncertainty and plan for future care needs.
Dr Patricia Carney, a Health Economist at the Centre for Economic and Social Research at NUI Galway who is leading the study, said: “New investment in dementia care must reflect the preferences and needs of both the person with dementia and their informal carer. Carers require more tangible and practical supports to allow them do the job that most love doing. The consequences of not supporting them will be significant for people with dementia and for society. This study has the capacity and potential to improve the lives of people with dementia and their carers’ in Ireland, especially in the time following diagnosis.”
Professor Eamon O’Shea, Director of the Centre for Economic and Social Research on Dementia at NUI Galway, said: “Carers play a crucial role in looking after people with dementia and we need to know much more about their needs and preferences for different kinds of services and supports.”
If you provide regular support or care to a person recently diagnosed with dementia and want to participate in the study or find out more, please email [email protected].
To participate in the study visit: www.nuigalway.ie/dementiacare/